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It Isn T Fair

Author: Stanley D. Klein
Publisher: Greenwood Publishing Group
ISBN: 9780897893329
Size: 42.10 MB
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This book presents a wide range of perspectives on the relationship of siblings to children with disabilities. These perspectives are written in the first person by parents, young adult siblings, younger siblings, and professionals. A series of chapters illustrates changing views about children with disabilities and their families. There is a unique collection of chapters by parents and siblings, including moving, firsthand accounts. The authors show the importance of parents as teachers of their children and illustrate the growing awareness of, and concerns about, the family when one child is disabled. Information in families must be shared, the book asserts, and the issues of fairness, expectations, rewards, punishments, caretaking responsibilities, and negative feelings are all thoroughly discussed.

International Review Of Research In Developmental Disabilities

Publisher: Academic Press
ISBN: 0123864968
Size: 42.43 MB
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International Review of Research in Developmental Disabilities is an ongoing scholarly look at research into the causes, effects, classification systems, syndromes, etc. of developmental disabilities. Contributors come from wide-ranging perspectives, including genetics, psychology, education, and other health and behavioral sciences. Volume 41 of the series offers chapters on a variety of themes. Provides the most recent scholarly research in the study of developmental disabilities A vast range of perspectives is offered, and many topics are covered An excellent resource for academic researchers


Author: Kate Strohm
Publisher: Routledge
ISBN: 113402214X
Size: 55.86 MB
Format: PDF, ePub, Docs
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The siblings of children with special needs are often the overlooked ones in families struggling to cope. Kate Strohm is an experienced health professional and journalist who has sister with cerebral palsy. In this book she shares the story of her journey from confusion and distress to understanding and acceptance. She provides a forum for other siblings to describe their own journeys. Kate also provides strategies that siblings themselves, parents and practitioner can use to support the brothers and sisters of children with special.

Being The Other One

Author: Kate Strohm
Publisher: Shambhala Publications
ISBN: 1590301501
Size: 59.85 MB
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Offers an honest look at the emotional challenges faced by siblings with disabled brothers and sisters, such as isolation, grief, anger, and anxiety, along with encouragement and practical strategies for clearly identifying and openly expressing their feelings and concerns--and includes a resources section listing books, organizations, and web sites. Original.

Raising A Child Who Has A Physical Disability

Author: Donna G. Albrecht
Publisher: Wiley
ISBN: 9780471042402
Size: 61.31 MB
Format: PDF, Kindle
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Parenting a child who has a physical disability can be complicated. This book will make your job easier. Compassionate, helpful, and based on real-life experience, it will help you handle every facet of raising and loving your special child, including: * Finding the right physical and mental health professionals * Solving stressful situations within the family * Boosting your child's confidence and self-esteem * Developing a proper support team you can trust * Dealing with hospitalizations and emergencies * Handling medical equipment at home * Managing medications, special diets, and hygiene needs * Getting a reluctant school district to meet your child's educational needs * Selecting a guardian or arranging for long-term custodial care You'll also find information about school placement options, the Individualized Education Program (IEP) and lists of medical specialists, organizations, and government programs that offer help for children with physical needs.

Family Consequences Of Children S Disabilities

Author: Denis P. Hogan
Publisher: Russell Sage Foundation
ISBN: 1610447735
Size: 11.96 MB
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The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology

Resilience Levels In Siblings Of Children With Developmental Disabilities

Author: Stephanie T. Gabbey
Size: 25.81 MB
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Families and parents of children with disabilities have been identified as resilient, yet have shared many stressors and threats to that resilience. Limited data attempts to investigate resiliency levels in siblings of children with developmental disabilities, with no known research to date evaluating the relationship of resilience levels in siblings of children with developmental disabilities compared to that of typically developing siblings. Purpose: The purpose of this study was to compare resiliency and coping strategies between siblings of children with developmental disabilities and siblings of typically developing children. Methods: Subjects were recruited through a mass email and flyer distributed to all families within a community school district and a follow-up study was completed recruiting siblings of children with developmental disabilities at the Minnesota State Fair. Children 9-17 years of age were placed into two groups: 1.) siblings of typically developing children (n=42, mean age= 149.33 months) and 2.) siblings of children with developmental disabilities (n=44, mean age= 158.05 months). Each participant completed the Resiliency Scales for Children and Adolescents: A Profile of Personal Strengths. Resiliency areas were assessed by three subtests: sense of mastery, sense of relatedness and sense of emotional reactivity. Results: An analysis of variance found no statistically significant differences between groups across all subtests (p